Our Precious Ethan Carter

Ethan Carter Lane was born on March 12, 2010, perfectly healthy except for a rare congenital heart defect (Supravalvular Aortic Stenosis and Supravalvular Pulmonic Stenosis) that has been passed down through the generations in my family. His sister, Emily (born November 22, 2004), has the same defect. She had two cardiac catheterizations with balloon angioplastys and open-heart surgery, all before the age of one. She is a happy, energetic little girl who has never been sickly (you would never even know she has a heart defect) and has an incredible future. Her little brother Ethan was expected to follow a similar course. He was a "normal baby"... he never looked or acted sick, never struggled, never let us know just how severe his heart defect really was. On June 4, 2010, at two months and three weeks of age, Ethan underwent his first procedure--- a cardiac catheterization with balloon angioplasty. Only they never started the actual procedure. When someone is put under general anesthesia, their blood pressure drops. When the doctors put our precious Ethan under, his heart could not handle the drop in blood pressure. He went into sudden, unexpected cardiac arrest, and teams of doctors tried everything they knew to save him. But, Jesus did the saving that day in His Own special way... and Ethan went to live forever in Heaven. This blog is simply one mother working through her grief and reconciling a Loving God with One Who allows us to suffer the loss of a child. It is also one mother wanting the world to know about her incredibly special son--- and the God Who loves him.

Friday, October 29, 2010

Ethan's Marker Is Almost Complete!

Ethan's new picture arrived about two weeks ago, and it is beautiful!

For those of you who read an earlier post, you might remember me mentioning that the picture on the right side of the marker was going to be replaced (we didn't like how it had turned out--- they put a black background behind it which required them to make some other changes, and it just didn't look like our Ethan).

I would like to take this opportunity to say that we love Paula, the manager at the cemetery and the one we purchased everything through... she has been such a blessing to us! We know we are probably high maintenance. :)

Now, all we are waiting for is the custom granite (it will be black and have Ethan's very own handprints and footprints etched into it)!

By the way, Emily adores cleaning her Little Brother's "special place"... she begs for the brush every day!




Thursday, October 28, 2010

We Said Hello






We said hello
Never dreaming that just three months later we would say goodbye

Jesus chose to fix your broken heart in Heaven
By breaking ours down here

One day the goodbye will be hello again
And our hearts will be fixed, too

Monday, October 25, 2010

Loving Us Well

Josh, Emily and I want to say thank you...

Thank you to our friends, family, church family, and medical professionals for loving us so well...

Thank you for your acts of kindness...

Your gifts in memory and honor of our sweet Ethan...

Your expertise...

Your tenderness...

Your patience...

Your tears...

Your faith in Our God...

and for crying out to Him on our behalf.


You are vessels of God's grace to us... His comfort to us in human form... and representatives of His love.

We are grateful for you... and we know Ethan is glad his Mama, Daddy and Sissy have so many people who love them.

We love you, too!

Saturday, October 23, 2010

Mama Loves You!

Missing you tonight, Sweet Boy...

As always.

I never knew my heart could physically ache like this...

Or that it was even possible to feel this much pain.

I love you, My Ethan.

One day you will look up at me with those big blue eyes again, and say the word I never got to hear you say on this earth, but long to...

You will call me "Mama".

And as I hold you for eternity, this present pain will be only the blink of an eye.

Come quickly, Lord Jesus.

Monday, October 18, 2010

Love, Mama

Dear Ethan,

We just got home from your "special place". We know you aren't really there, but we can't help but go every day, anyway.

Tonight, Sissy and I sat by your grave and sang songs to you, raising our voices and faces to Heaven, like we always do when we sing to you... because we know that's where you really are.

We sang "You Are My Sunshine" first, then "Jesus Loves Me"--- the only song I ever really sang to you when you were here with us. For some reason, I never sang any other... I just repeated that one over and over again.

Looking back, I'm not sure there could have been a better choice. Because when you met Him face to face, you saw how true that song really is.

So, after Sissy and I sang those, she started making up songs about God for us to sing.

And informing me I was singing them incorrectly.

She is a very bossy worship leader! :)

I told her how one day in Heaven, you and her will sing songs to Jesus together.

Oh, Ethan... how wonderful that day will be when we are finally together again--- and for eternity!

After singing, Daddy, Sissy and I prayed like we always do... for God to help us make it through another day, and for amazing things to come from your life.

Ethan, I want you to know He is answering those prayers every day.

We not only make it through each day, but already amazing things have come from your life.

I love you, Sweet Boy...

Beyond measure, forever.

Love,

Mama

Friday, October 15, 2010

From Ethan's Daddy

As a father and a husband, you spend so much of your time trying to convince your family it's going to be okay. But, how do you stand tall when you've been sucker-punched and you're just trying to catch your own breath?

This race that we're now running is not only long, but it's completely isolated. The most sympathetic people struggle to only imagine what it feels like to hold your dead son in your arms, as blood trickles from places it shouldn't. Yes, that's my nightmare! Though I would not trade the time we spent with Ethan after he was welcomed Home to Heaven, I can't shake the feel of his cold face against my lips. Morbid, I know... but, in a way, a treasure. It's what I have left.

You see, when I lost Ethan, I lost more than a son who held my heart--- I lost a big part of me. I became a man who wears two faces--- one that is so broken it yearns for death, the other a small, annoying nag that won't let me quit. I know Ethan doesn't need me now, for he has Jesus. Even though I need him. But his sister needs me, and for her I will carry on. I do not want her to have lost her brother and me at the same time.

I know most people do not understand this, but he was my miracle. I longed to see his day. I prayed for a son my entire life. His sister will never know this (and I would not trade her for the world--- she is my heart, my love for her knows no bounds--- I can't express my love for her, but they both represent a different part of me), but I wanted a boy first--- so he could protect his sissy.

When I lost Ethan, I lost more than my baby--- I lost my son, and I lost a big part of myself that has existed for as long as I can remember. Ethan was the epitome of all I had hoped for, my dreams, my fantasies, and my future... we were all waiting for the day of his arrival.

I loved him before he existed. Then, when he was born, he was all I hoped for and more. He was a dream come true to the 100th power. I was overcome by him. My past expectation and wonder met the most perfect embodiment of a son anyone could ask for. When my dreams met reality, and reality was beyond compare... I was complete. I was happy. For the first time, amidst all the heartache I have been through, it all came together in Ethan, his sister, and his mommy. I was, for the first time, completely whole. My family was complete--- all the pieces fit together.

I had my daughter, who I must confess, is truly my heart--- I love her so much. I had Ethan, the embodiment of all I hoped for, made perfect before me. I had their mom, in which I have pledged my life. This equaled wholeness.

Now I am incomplete.

I just want to tell him:

Son, Ethan, I needed you. I need you. You don't understand how much I need you. How I long to hold you, to kiss you. To tell you again how much I love you. The thought of never being able to tell you I love you rips out what's left of my shambled heart after your death. Life is a cruel joke... for while it feels like in just a minute I will be able to hold you, it never comes.

It's like something dangling right in front of me, and with all my might I lunge forward--- and fall right on my face, for you are just out of reach. You're such a real reality... yet, it feels utterly hopeless.

But I wait on, until we are reunited again.

Everyone acts like you will automatically at some point be mad at God. But, it's my heart that is decimated--- not my faith. I can be in torment and still love God more now than ever. I'm in torment, yet I love Emily and my wife more now than ever!

I want to know God deeper than I ever have. I want to see the face and rest in the arms of the One who holds my son.

When all is said and done, only One really knows my pain, and it's Jesus. As much as my wife and I are the only two humans that truly know our story best, I still do not understand fully what it was like--- and is like--- to be Ethan's mom.

So I will forever hold her hand as we run together, and I will thank God when He holds her hand when our track divides.

But, most importantly, we will both hold the hand of the Only One who is Faithful and True. Though we see but through a glass, cloudy--- one day we will see face to face and all will become clear. I long to see the God of Restoration... but, what I long for even more than that is to hear the words, "Well done Thou good and faithful servant"--- not "You made it by the skin of your teeth", but "Well done". With that, everything will be right. Down here, not everything turns out well. One of these days, every wrong will be righted. One of these days, everything will be made correct. Heaven will be right. Things will just be right.

Tuesday, October 12, 2010

Happy 7 Months, Sweet Ethan Carter!

Oh, Baby Boy...

Seven months old today--- I can't believe it!

And I can't believe you're not here with us.

When I get to Heaven, I'll have a lot of kisses to give you to make up for the ones I can't give you here... good thing we'll have eternity!

I am so proud of you, Ethan.

My heart bursts with pride that I am your Mama... and aches because I am your Mama and I can't be with you right now.

I love you and miss you, Sweet Boy... sit with Jesus and let Him tell you a story...

Monday, October 11, 2010

Ethan Gets Sugar At Church



Ethan's last time at church was Sunday, May 30, 2010.

It was Movie Night that evening, and during intermission, Ethan was entertained by Mrs. Letitia... and Ethan loved her!

A precious picture of a precious moment...

Monday, October 4, 2010

Saturday, October 2, 2010

Moments Like This

May 10, 2010



It's simple moments like this I sometimes miss the most.

Ethan and I were waiting for his Sissy to get out of dance and gymnastics...

I had just nursed him (very discreetly) in the car, so his little belly was all full...

I remember feeling so content, so happy, so thankful...

and giving him so many kisses.