Our Precious Ethan Carter

Ethan Carter Lane was born on March 12, 2010, perfectly healthy except for a rare congenital heart defect (Supravalvular Aortic Stenosis and Supravalvular Pulmonic Stenosis) that has been passed down through the generations in my family. His sister, Emily (born November 22, 2004), has the same defect. She had two cardiac catheterizations with balloon angioplastys and open-heart surgery, all before the age of one. She is a happy, energetic little girl who has never been sickly (you would never even know she has a heart defect) and has an incredible future. Her little brother Ethan was expected to follow a similar course. He was a "normal baby"... he never looked or acted sick, never struggled, never let us know just how severe his heart defect really was. On June 4, 2010, at two months and three weeks of age, Ethan underwent his first procedure--- a cardiac catheterization with balloon angioplasty. Only they never started the actual procedure. When someone is put under general anesthesia, their blood pressure drops. When the doctors put our precious Ethan under, his heart could not handle the drop in blood pressure. He went into sudden, unexpected cardiac arrest, and teams of doctors tried everything they knew to save him. But, Jesus did the saving that day in His Own special way... and Ethan went to live forever in Heaven. This blog is simply one mother working through her grief and reconciling a Loving God with One Who allows us to suffer the loss of a child. It is also one mother wanting the world to know about her incredibly special son--- and the God Who loves him.

Friday, November 5, 2010

Why Didn't He? (Warning: Raw)

I re-organized Emily's keepsakes tonight into new boxes.

I have been dreading this... I knew it would be so special to reflect on Emily's life so far, but that at the same time it would be a slap in the face of everything we will never get to have with Ethan.

No artwork, no birthday/holiday cards, no Sunday School papers, no letters to or from Santa or the Tooth Fairy, no awards, certificates, or programs, no ticket stubs from baseball games, theme parks, plays... no handmade cards to Mama and Daddy saying, "I love you"...

I expected a flood of emotions.

What I didn't think about is how I would feel when I came across the mementos from Emily's heart procedures/surgery.

The hospital bracelets, the newspaper article about her world-famous heart surgeon, the Bravery Beads stuff, the get well cards...

In an instant, it was 2005 again, and I remembered the fear.

The fear of losing her.

She had her first procedure at three-and-a-half months old.

Five years later, we feared losing Ethan.

And the same procedure that his sister handled so well killed him, when he was almost three months old.

Actually, the anesthesia for the procedure.

Five years ago, Emily also made it through another cardiac cath with balloon angioplasty at 10 months, and open-heart surgery at 11 months.

And her little brother didn't even make it through the anesthesia for the first one.

Yes, his heart was worse than Emily's. But, after he died, their cardiologist told us you could take 10 other babies with hearts just like Ethan's, and this wouldn't have happened--- that's how rare this is.

Why couldn't God protect Ethan like he protected Emily????

Or rather, why didn't he?

You see, one of the hardest things to accept is that God could have intervened and let Ethan stay here with us.

And he chose not to.

I don't believe for a second I am any less of a Christian because I have a hard time with this.

I am a grieving mother, pure and simple.

I don't know how to put it into words, but I need to try...

When I looked through her stuff, I thanked God for what he did for her--- and us. I can't even begin to explain how precious she is, and always has been, to us.

At the same time, I felt incredible, horrible agony that he did not do it for her little brother, too.

Yes, I know Heaven is the ultimate best for everyone. I know Ethan is living in complete joy and fulfillment.

But I am his Mama.

And I just want him here with me.

2 comments:

  1. You have every right to feel this way. You are grieving and the whole grieving process takes time. I still have days I feel this way about Christopher. How could God let him suffer to the point that he felt he had to do what he did? I know they are different circumstancs but the questioning and anger are the same.

    You have been so strong. Continue to be and know that I think of you every day. If there is anything I can do let me know. I love you!

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  2. Laura--- I love you, too! I wish we lived close so we could get together and talk and cry in person whenever we wanted to...

    I think about Christopher so much--- always have, always will...

    I know God understands our questions, and I know He would rather us ask them than stop talking to Him!

    I miss you...

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