Today was Emily's last baseball game of the season.
When she was in the bathtub this morning, she said in a sad voice, "Ethan never got to see me play baseball at all."
I told her maybe she and Ethan will play baseball together in Heaven one day... and about how when she gets to Heaven she will say, "Ethan, here I am!" and he will say, "That's my Big Sissy!"
In the car on the way to her game, I told her if she wanted we could get a baseball and take it out to Ethan's grave... that even though he isn't really there, things we take there are still really special. She liked the idea of taking him a ball, and I told her she would have to sign it since she was the player.
Josh was driving, and silent tears streamed down his face when she told us exactly what she wanted written on the baseball:
"Dear Ethan,
I played baseball. I hope you are playing baseball in Heaven.
Love,
Emily, to Ethan"
Oh, Jesus, be near us now...
I haven't written for a week, because I haven't really known what to say. Words have felt meaningless. There is simply no way to adequately describe the pain. Being separated from Ethan, though it is only temporary, is horrific.
Josh and I are just taking it one day at a time... doing our best to take care of each other and our sweet Emily, and depending on God for every breath.
Our Precious Ethan Carter
Ethan Carter Lane was born on March 12, 2010, perfectly healthy except for a rare congenital heart defect (Supravalvular Aortic Stenosis and Supravalvular Pulmonic Stenosis) that has been passed down through the generations in my family. His sister, Emily (born November 22, 2004), has the same defect. She had two cardiac catheterizations with balloon angioplastys and open-heart surgery, all before the age of one. She is a happy, energetic little girl who has never been sickly (you would never even know she has a heart defect) and has an incredible future. Her little brother Ethan was expected to follow a similar course. He was a "normal baby"... he never looked or acted sick, never struggled, never let us know just how severe his heart defect really was. On June 4, 2010, at two months and three weeks of age, Ethan underwent his first procedure--- a cardiac catheterization with balloon angioplasty. Only they never started the actual procedure. When someone is put under general anesthesia, their blood pressure drops. When the doctors put our precious Ethan under, his heart could not handle the drop in blood pressure. He went into sudden, unexpected cardiac arrest, and teams of doctors tried everything they knew to save him. But, Jesus did the saving that day in His Own special way... and Ethan went to live forever in Heaven. This blog is simply one mother working through her grief and reconciling a Loving God with One Who allows us to suffer the loss of a child. It is also one mother wanting the world to know about her incredibly special son--- and the God Who loves him.
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